Monday, 30 July 2012

Really, do I have pleurisy AGAIN? 

Dear God/ Supreme Being,
I would like to exchange my Jen Model 1 for a newer version.  I realise this model is out of warranty.  It was constructed in line with the instructions and was delivered in good working order, but appears to have serious and inherent design flaws.  At present the air intake and rear exhaust systems are severely compromised.  Im not sure if your support desk is staffed, but if you could get back to me as soon as possible it would be much appreciated.  xx

Saturday, 28 July 2012

Roller coaster continues

Hi! Its been a busy but happy week !!! After dismal news from the fill-in oncologist, dr Doom said I have a 'pristine peritoneum' (not to be confused with a similar sounding body part). It means that there is no sign yet of the cancer spreading to my stomach lining. My cancer markers are up again from 2.7 to 5.6 to 5.9. He said it could be the cancer is too small to see yet,in which case it will show itself over time. Or it could be inflammation elsewhere. So its really good news!!!! No need to go to that nasty Folfiri chemo yet. Also my dear friend is pregnant, and I went to the dentist expecting yucky dentist stuff and didnt need anything done. Good things come in threes and its been an awesome week! Im so happy :-). Thanks to all our friends and family for your support, especially Mum for surprising me with a visit to come to my scan with me. Im so lucky to have fab family and friends ;-)

Wednesday, 4 July 2012

I forgot to add that my husband is super handsome and can walk on please untie me Andrew!

4 july 2012

Im feeling good on the xeloda and enjoying having the kids home for the holidays. Had chemo today, not good news. My cea (cancer markers) have gone up suddenly to 5.9. Anything under 3 is normal. Its a shame as ive been feeling really strong. doc says the likelihood is that it has started to form a tumour/s in the peritoneal area which means all over red rover. He said I can choose whether to see how it goes, or have a scan now to see what they can pick up and they might put me on the folfiri chemo regime. He's asking me this? Excuse me while I go and get a degree or two in oncology! Im still fighting so I said yes to the scan so I can start on folfiri straight away. Folfiri is the last treatment option for me, i never thought it would get to this. But theres still a chance the scan will show up nothing so please keep your little toes crossed for us. My family have been absolutely awesome, love them heaps. Friends too have jumped in to help. I know its not an easy thing to do, its hard to know what to say to someone in our situation...just know that we appreciate it more than you can know! In the meantime Im gearing up for the city to bay funrun on 16 sept. We are raising funds for the Lisa Fahey foundation - feels good to be helping someone else for a change! Look out for us, our team hats have chickens on them so we should be easy to spot. i'll be shuffling the 3 kms most likely with my chook hat on. Cluck!